A positive PH specialist hospital visit

Well we are already at the the of October. As I'm currently writing this i'm on my half-term hols from work. Not done a great deal apart from having my INR's checked, meeting up with friends and generally sleeping. Being back at work has real took it out of me this term. I have already had a week off with being ill!!!! It wasn't PH related thank goodness, but it made me feel awful. I had a virus/cold/chest infection and felt miserable the whole time. I had to get myself better as I was going to Zoe's PH Phighters party. It was lovely to finally meet with Zoe and know that there is someone else with PH who lives not to far from me. The party was fantastic and the total amount of money raised was well over two grand. Well done to all of Zoe's friends, family and colleagues. 

Me and Zoe.

Last week 19/10, I had a clinic appointment with my PH specialist. All is well and i'm stable on my meds. They have taken me off my amolodipine tablet as it's doing exactly the same thing as the sildenafil and macitentan. The specialist said it shouldn't make much of a difference to me but if my symptoms flare up I have to ring Sheffield and they will put me back on them. I also asked about a "fit to fly" certificate as i'm going to Marbella next April on a hen do!! The specialist said I would need oxygen as my oxygen levels dip up and down. So now I have to ring my specialist centre and speak to the nurses to arrange oxygen for myself. I also got to meet two other PH patients whilst at Sheffield, Judith and Steph. Was lovely to meet them both, i've never actually met anyone from the Facebook group at my specialist centre before. Was good to have a chat about how we manage our PH and how we where feeling. Steph I hope your feeling better. 

 I'm also looking forward to meeting lots of other PH friends at the conference this weekend.