As the title says, it's true living with a chronic illness is tiring, especially when your not feeling 100% yourself. Since the new year I have been a busy person living my life to the fullest, as much as I can without PH defeating me.
I had a routine appointment with the transplant consultant at the beginning of January. All was well apart from the fact that I have put a bit of weight on. Who doesn't over Christmas and New Year!!!! He basically said I need to keep as active as possible, which as we all know is very hard work when you have PH. But I joined the gym back in November and try and go twice a week. That sometimes doesn't happen especially if i'm meeting up with friends during the day or if i'm really tired. I also try and go for a walk with my mum/dad and Jasper doggie. Weather permitting, as always I struggle when it's very windy, like it has been at the weekend.
The last few weeks have been somewhat busy. I've been staying at work an hour longer than I should so I can help out with the lunch club. And i've started to feel the effects it has on my body. Today (Monday) my body just did not want to play. I got up as usual ready for work, had breakfast and my tablets. Then just as I was about to set off for work I was sick all over the kitchen floor and sink!!! Now this got me very upset and worried as this was how I was just before diagnosis with PH. I thought to myself that it couldn't be PH as I would have been like that for a while if things where deteriorating. I think it's because i'm feeling rather exhausted and had had a busy weekend to. It also doesn't help when i'm smothered in a cold!!!
Anyway as i'm writing this I am feeling better but just absolutely worn out. But I will carry on none the less. It's only 1 and a half weeks of half term. I can make it and I will!!!!!
This weekend coming 6/7th Feb is my brothers birthday. So I will be busy celebrating that with him and my family. The weekend after that will be celebrating his birthday to. We are all going to the casino in southport. Should be fun, as i'm a "lucky" person as my family keep saying.
I will let you all know how we get on.
As always thanks for reading.
Here's to a fab 2016.